Sunday, January 31, 2010

Answer

My last questions was "Can medicines used to treat addictions help with MS?"


The correct answer was yes!

The only problem...I can't remember where I found the information!
I must have found that tid-bit of info on a day where my memory wasn't the best!

From what I remember reading, there was a research study performed and the goal was to see if "old" meds could be re-used towards a different treatment.

One of the ones they discovered was a medicine formally used to help in addictions treatment and I believe it had shown to prevent swelling in the brain and in turn help the Myelin stay intact.

Sorry! I dropped the ball on this one!

Wednesday, January 27, 2010

Still debating...

I am still feeling good today!
I am also still stuck with the debate "To take or not take the shot"...

Here are some of my dilemmas and inner debates.
My last relapse was 12 weeks and the current one was / is about 3 weeks.
Summer vs. Winter
I never felt that it was really helping.
The effects of the injection daily is a lot to deal with. The welts, the itchy feeling, the swelling, the pain...
How good can it be if I deal with this every day.
I no longer "like" taking the shot. I actually dread it at night time.
If the Liberation treatment will truly work...what's the point.
What is the point? If I have a collapsed vein which I do...what is the injection doing to help it? Shouldn't I just be taking ASA daily to thin my blood?

Sunil suggested I think of taking the injection every other day...never thought about it until then and now I can't help but think about it!

The skin on my legs is now getting very thin.
Vein blood vessels under the skin on my legs are now very purple and is just not what "health" should look like in my eyes.

I clearly have some pondering to do.
It truly is a decision only I can make and I simply have no answers at this point.

Tomorrow we are attending Mark's great uncle's funeral.
He has been ill a very long time and at 91 I think he was ready to go.
He served in World War II as well as being part of CREB (The Calgary Real Estate Board) in the early days! He has a great family and will be missed.

Rest in peace Ervie
xox

Tuesday, January 26, 2010

Feelin' better

Well I certainly feel better then I did early this month!
I still have a lingering sinus congestion but I am way better!
My first relapse seemed to go on forever and I missed out on a great summer because the heat and fatigue factor. 12 very long weeks.
This relapse, dare I say I'm on the tail end?
It was winter which I think made a difference because I deal way better with the cold.

The worst of this relapse I would say was the severe heat flashes.
Everyone in the office would be freezing and covering up with sweaters or even their coat and here I was looking insane in a tank top and wishing I could strip down to my undies! Not to mention the ice packs under the arms and around my neck!
I did talk to my nurse about this and it seems to be a "Natalie" symptom.

This past Saturday there was a very long story in the Calgary National Post on the research papers and procedure performed by Dr. Zamboni.
The MS clinic is not for nor against it but more interested in doing their own research which I think is fair. I also see the side of the patient. If they have had the ultrasound - like I have - and know that they have blocked or collapsed veins and arteries...FIX ME. That should be a no brainer!

The Pharmaceutical companies and the doctors employed by them obviously don't approve of the research. I promised myself not to start on this as is it a sensitive subject in our house but I will say this...In the US alone the MS Pharmaceuticals is a 8.2 Billion dollar industry....'nuf said?
Think about it...Canada is one of the countries with the most registered patients...

There are some doctors calling the Liberation treatment a hoax and are mad because there are now millions of dollars being spent to prove or negate the findings. One doctor believes that the money and time is being wasted.

I have the link if you are interested in reading it.
http://www.nationalpost.com/news/story.html?id=2475272

There were two long stories in the paper...This is the more tamed one...Imagine!