Wednesday, May 5, 2010

An update on me.

I thought that since today is Global CCSVI Day I would recap my story.

Here goes!

On June 19th,2010 it will have been 1 year since I was diagnosed with MS.
Last May - one year ago...my time flies! - I was going through a very stressful time personally. I wasn't sleeping, hardly eating and dealing with a few things I won't share here.

On June 4th I was blind in one eye. Being the hard headed woman I am I ignored it.
We had a family diner that weekend and the whole family was urging me to get it looked at. I caved and seen my eye doctor on the Tuesday. His report was that I either had MS (I had to idea what it was at the time) or a tumor on the brain. Common sense kicked in...Eh! I'll take MS please! It didn't sound as serious!

This did not worry me one bit. I mean Hey..I was 26 and a healthy young woman and new mom. I couldn't be sick.

But by Friday I had seen an eye specialist and she basically said oh you must have MS...I'll send you for an MRI. She was not friendly what so ever and leaving I broke down in worry. Only lasted a hour. I must be fine!
(As a side note here - I received a call in late October to book my MRI in January. Hello...8 months I would have waited to know what was going on.)

Mark's work was very worried and knew more of MS then I did so they told us to book in for an MRI at a private clinic and they would cover the cost. Ends up Mayfair Clinic covered the cost. Thank You!

By June 19th I was back in Dr. Yip's office and had my diagnosis.
I left his office and went straight to Chapters. Spent too much money on books and started reading.

Other then the one hour I spent being worried and sad I have not let this beat me down. I have always looked to the bright side and I truly believe that this is a healing methods in itself.
I don't look at MS as a bad thing. Simply something that has been given to me as a mission to either fix or find answers. I has also given me a different outlook on life, how I deal with things and what is truly important.

A few months later Greg turned me on to blogging! Thank you! I very much enjoy this now!

By Late August, Chris and Ann gave Mark and I this research paper they got in Europe by a doctor named Zamboni.
Wow what a dry read that was! But I knew it was breakthrough stuff and I shared with all my doctors. No one knew what this was about. I researched and dug and dug for information. Dr. Kale actually thought it made sense and coincided with the Upper Cervical Care he provides.

October 5th I started work again from being on maternity leave. A few weeks later I was out of office and I had a co-worker call me to tell me of a W5 report I should watch.

Oh....Dr. Zamboni!
Finally you pop out of the woodwork!
I cried.

Now almost one year later he has come a long way and so have I.
He is making progress spreading the word and pushing for more answers.
I have been for the testing and am healthy and not a candidate for the procedure.

I am continuing to gather information and hope that one day something will apply to those of us who do not seem to be affected by CCSVI at this time.

Let the research continue!

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