I must say...Frustration is something that becomes almost a new best friend when you are diagnosed.
I called the MS clinic today to try to add the CCSVI testing to my next MRI and was flatly told that no one in Alberta will be tested. No and, ifs or buts.
Well then.
How , please tell me, is one to get better if you are being refused a testing that could potentially help you get better?
In case you are not sure what the CCSVI testing entails...
It is about an extra 20 minutes added to the MRI. They inject you with contract dye and then take a series of images that only show then veins, arteries and blood vessels in your body (part being looked at). This is were they can see clearly if there is an obstruction in the veins or if they are collapsed.
There you have it.
I am on the hunt for a place..anywhere... to get the testing done. Private clinic or not.
Nat,
ReplyDeleteI am the admin for a Facebook group in BC tracking CCSVI. We have a private clinic in Vancouver doing the scans now. Here's the Facebook page for our group:
http://www.facebook.com/pages/Victoria-Vancouver/CCSVI-at-UBC-MS-Clinic-Information-and-Support/182832983940?ref=mf
The clinic's name is False Creek Surgical.
Good luck!
Sandra